Platinum Sponsors
Ipsen is a global biopharmaceutical company focused on innovation and specialty care. At Ipsen, we develop and commercialize medicines in three key therapeutic areas – Oncology, Neuroscience and Rare Disease. We work to provide hope for people whose lives are impacted by rare liver diseases, such as Alagille syndrome (ALGS) and progressive familial intrahepatic cholestasis (PFIC), a rare growth disorder or rare bone disease. To us, it’s important we put the person living with rare disease first in all that we do. Every day, our more than 5,000 employees worldwide, including nearly 800 in North America, work diligently to improve lives around the world.
Mirum Pharmaceuticals is a leading rare disease company with a global footprint of approved products and a broad pipeline of investigational medicines. Purpose-built to bring forward breakthrough medicines for people with overlooked conditions, Mirum combines deep rare disease expertise with strong connections to patient communities. The company’s commercial portfolio includes LIVMARLI® (maralixibat) for Alagille syndrome (ALGS) and progressive familial intrahepatic cholestasis (PFIC), CHOLBAM® (cholic acid) for bile-acid synthesis disorders, and CTEXLI® (chenodiol) for cerebrotendinous xanthomatosis (CTX).
Mirum’s clinical-stage pipeline includes volixibat, an IBAT inhibitor in late-stage development for primary sclerosing cholangitis (PSC) and primary biliary cholangitis (PBC), brelovitug, a fully human monoclonal antibody in late-stage development for chronic hepatitis delta virus (HDV), and MRM-3379, a PDE4D inhibitor being evaluated for Fragile X syndrome (FXS).
Mirum’s success is driven by a team dedicated to advancing high impact medicines through strategic development, disciplined execution and purposeful collaboration across the rare disease ecosystem.
Gold Sponsor
Silver Sponsors
Alcresta Therapeutics is dedicated to developing and commercializing novel, enzyme-based products designed to address challenges faced by people living with gastrointestinal disorders and rare diseases. The company’s lead product, RELiZORB, is indicated for use in pediatric patients (including neonates and infants) and adult patients to hydrolyze fats in enteral nutrition.
Bridge to Life, with a strong focus on product quality and accessibility, is advancing the mission of saving lives with innovative solutions —including gold standard Belzer UW® Solutions and the cost-effective, easy-to-use VitaSmart™ Hypothermic Oxygenated Perfusion system—designed to improve organ viability, enhance recipient outcomes, and optimize transplant success.
A pioneer in its field, Echosens significantly changed the practice of liver diagnosis with FibroScan®, the non-invasive gold standard solution for comprehensive management of liver health. FibroScan® is recognized worldwide as the reference for liver fibrosis and liver steatosis assessment with more than 5,384+ peer-reviewed publications and 218+ international guidelines.
Bringing more to parenteral nutrition (PN): As the US market leader in lipid injectable emulsions (ILEs),1 Fresenius Kabi offers more options, more choices, and more variety to nourish critically or chronically ill patients of any age—from hospital to home.
A global biopharmaceutical leader advancing treatments in gastroenterology, rare diseases, and immunology.
Vytala is a US-based food technology company, founded with a deep sense of purpose, we’re committed to advancing nutrition to help people achieve their best health. It’s our aim to end nutrient deficiencies, starting with fat malabsorption. Our proprietary lipid technology is clinically proven to enhance fat and nutrient absorption, optimizing weight gain, height growth, and overall health. Our first product is classified as a medical food and is eligible for CMS reimbursement. Join us on our mission to help people achieve their best health through the power of nutrition.
Bronze Sponsors
Alexion, AstraZeneca Rare Disease, is the group within AstraZeneca focused on rare diseases, created following the 2021 acquisition of Alexion Pharmaceuticals, Inc. As a leader in rare diseases for nearly 30 years, Alexion is focused on serving patients and families affected by rare diseases and devastating conditions. Headquartered in Boston, Massachusetts, Alexion has offices around the globe and serves patients in more than 50 countries.
Developing cellular biomarkers for personalized diagnosis and drug development in infectious diseases, solid organ transplantation, as well as immunological disorders.
Grants
Veloxis provided a medical education grant to SPLIT 2026.
Centers of Excellence
Leading pediatric hospital offering liver and multi-organ transplant care in Central Florida.
Ann & Robert H. Lurie Children's Hospital of Chicago is home to one of the nation’s most experienced and comprehensive pediatric liver transplant programs. Our team specializes in the most complex cases, including transplantation in small infants, combined heart–liver and liver–kidney transplants, split-liver procedures and other technical variants, as well as a robust living donor liver transplant program. We are also recognized leaders in both the clinical care and research of acute liver failure in children.
Making life better for children for more than 110 years.
Children’s Health is the leading pediatric health care system in North Texas and has long been recognized as a leader in pediatric health. Children’s Health campuses include Children’s Medical Center Dallas, Children’s Medical Center Plano and multiple Children’s Health Specialty Centers. With its academic partner, UT Southwestern, Children’s Medical Center Dallas is consistently ranked the No. 1 children’s hospital in North Texas and among the nation’s best pediatric hospitals by U.S. News & World Report. Its commitment to excellence and providing outstanding care across all aspects of pediatrics has resulted in being ranked across all specialty programs for seven consecutive years.
Here, it’s different.
The Liver Transplant Program at Children’s Hospital Colorado offers a unique and specialized program devoted to the care of children who require liver transplantation. Our unique multidisciplinary team cares for kids and families from the time of diagnosis to transplant and all the way through long-term post-transplant care. We achieve some of the best outcomes in the nation by working with every medical and surgical specialty in the hospital to reimagine children’s lives.
The Children’s Hospital Los Angeles liver transplant program is one of the highest-volume pediatric centers in the United States and has top-tier outcomes nationally, including best one- and three-year patient survival despite undertaking highly challenging cases. These results reflect sustained excellence in medical and surgical care, multidisciplinary management, and scientific innovation.
The Liver Transplant Program at Children's Hospital of Philadelphia (CHOP) provides patients with high value care during every step of the liver transplant process. We are one of the most active pediatric liver transplant programs in the United States, and our outcomes are among the best in the nation. Our surgeons focus exclusively on liver surgery and transplantation for children. Our team has experience with the most complex pediatric cases and have performed all forms of liver transplants and surgeries.
The Brendan Tripp Elam Transplant Center at Children’s Mercy in Kansas City, Missouri specializes in pediatric heart, liver, kidney, and multi-organ transplants. The Liver Transplant program is part of the Liver Care Center, offering comprehensive care for children with liver disease. Founded in 1897, Children’s Mercy is a non-profit, independent children’s hospital with approximately 9,000 employees and more than 50 pediatric specialties. It features the highest-level pediatric trauma center and neonatal intensive care unit and has earned Magnet designation six consecutive times. The hospital has been performing transplants since 1991, and the Brendan Tripp Elam Transplant Center was established in 2014 through a philanthropic gift from Montie and Marjorie Tripp, whose grandson received a liver transplant at Children's Mercy.
The Pediatric Liver Transplant team at Children’s of Alabama has collaborated with the University of Alabama at Birmingham (UAB) transplant services since 1993 and has performed 150 liver transplants. The Pediatric Transplant Center at Children’s of Alabama was opened in March 2013 at the Benjamin Russell Hospital for Children. Our patients are cared for by a skilled, multidisciplinary team including UAB surgeons, pediatric gastroenterologists, hepatology services, liver transplant coordinators, and other specialists in our transplant program. Our team coordinates all aspects of care during the evaluation phase, transplantation, and post-procedure care to ensure positive outcomes.
Since 1911, Children’s of Alabama has provided specialized medical care for ill and injured children. Children’s of Alabama is the only medical center in Alabama dedicated solely to the care and treatment of children. It is a private, not-for-profit medical center that serves as the teaching hospital for the UAB pediatric medicine, surgery, psychiatry, research and residency programs.
Children’s Wisconsin has been a pioneer in pediatric heart, liver, kidney and bone marrow transplants for over three decades, helping hundreds of children with end-stage diseases survive and thrive. They offer many family support services including an Access Center, Child Life Services, and a Family Resource Center.
Cincinnati Children's is a nonprofit pediatric health system, consistently ranked among America's best hospitals and a top recipient of NIH pediatric research funding.
Our highly trained, experienced liver transplant team leads one of the largest and longest running transplant programs in the country. We offer exceptional transplant outcomes while caring for many of the most complex patients and conditions. In partnership with Cincinnati Children’s #1 ranked pediatric cancer center, our team has performed more liver transplants for patients with liver tumors than any other center in the U.S. over the last 10 years.
The Columbia University Pediatric Liver Program is a destination for exceptional care for children with complex liver disease and pediatric liver cancers. Our world‑class, multidisciplinary team delivers expert care across every stage—from diagnosis and advanced medical treatment to surgery, transplantation, and lifelong follow‑up. Families from around the globe trust us for our expertise, innovation, and unwavering commitment to their child’s health.
Columbia University and NewYork‑Presbyterian are internationally recognized leaders in pediatric liver transplantation. Our comprehensive program brings together renowned specialists, cutting‑edge surgical techniques, and pioneering transplant therapies to deliver outstanding outcomes. As one of the largest living donor liver transplant programs in North America, we offer unmatched experience, high procedural volume, and a proven track record of excellent outcomes —providing children the best possible chance for a healthy future.
University of Michigan’s children’s hospital with strong transplant expertise.
The Monroe Carell Children’s Hospital at Vanderbilt, Pediatric Solid Organ Transplant Center, is part of the Vanderbilt Transplant Center, the largest transplant system in the United States. Our mission is to serve children with end-stage organ failure and offer them the opportunity to live exceptional lives through heart, liver, kidney, lung, and multi-organ transplants.
Nationwide Children’s Hospital provides comprehensive liver transplant care for infants, children, and young adults with end-stage liver disease. Our multidisciplinary team of hepatologists, transplant surgeons, and specialized transplant professionals delivers coordinated, patient-centered care across the entire transplant journey. The program is distinguished by excellent clinical outcomes and expertise in advanced surgical techniques—including split, reduced-size, and living-donor liver transplantation—which expand organ availability and help reduce wait times for children in need. We provide expert evaluation, perioperative management, and long-term follow-up, working closely across specialties to ensure children and families receive exceptional clinical care, innovation, and support.
Nemours is one of the largest multistate pediatric systems, with two children's hospitals and 70+ care practices, focusing on holistic, high-quality child health.
Phoenix Children’s is Arizona’s only freestanding comprehensive pediatric hospital, and has grown to become one of the largest children’s hospitals in the United States. With a medical staff of nearly 1,000 pediatric specialists, Phoenix Children’s provides inpatient, outpatient, trauma and emergency care across more than 70 pediatric subspecialties, the most comprehensive pediatric care available in the state.
The pediatric liver transplant program at Phoenix Children’s provides an invaluable resource to the state of Arizona and the local community as the only pediatric liver transplant program in Arizona. The program uniquely integrates a multidisciplinary liver transplant team approach that is equipped to meet the needs of every child at each stage of development. In addition to pediatric transplant physicians and transplant surgeons, the team includes specialists in child life, social work, nutrition, pharmacology, and transplant nursing coordination to ensure continuous care and management of patients through every period of a successful liver transplant.
Utah’s major pediatric transplant center, affiliated with the University of Utah.
Hope. Care. Cure.
At Seattle Children’s we provide hope, care and cures to help every child live the healthiest and most fulfilling life possible. As the only pediatric liver transplant program in the Pacific Northwest, we have been a national leader in the field since 1990 and a pioneer in living donor transplants since 1999.
We are proud to be active members in SPLIT leadership, dedicated to supporting the transplant community through collaborative research, quality improvement (QI), and direct support for patients and families. Additionally, as part of the Childhood Liver Disease Research Network (ChiLDeN), we work to optimize care for children with biliary atresia and other cholestatic conditions, with a primary goal of improving outcomes and avoiding the need for transplant whenever possible.
Since 1985, St. Louis Children’s has performed over 400 liver transplants including dual-organ and split-liver procedures, with a strong living donor program.
The Pediatric Liver Transplant Program at Stanford Medicine Children's Health stands as a national leader, boasting patient outcomes among the best in the country. With decades of experience, our team expertly manages children of all ages and all types of liver disease, including advanced liver failure, combined heart-liver, and other multi-organ pediatric transplants.
Renowned for our research discoveries, innovations, and outstanding clinical outcomes, our extensive team possesses deep expertise. This allows us to offer the latest treatments, providing children with their best opportunity for a successful life post-transplant.
Texas Children’s leads the U.S. in liver transplants by volume and complexity, having performed nearly 800 since 1988 and accepting more organ offers than any other program.
The SickKids Transplant and Regenerative Medicine Centre (TRMC) is Canada's most research-intensive paediatric transplant program and the largest centre dedicated to comprehensive transplant care in Canada.
Our case volumes are now within the top five per cent of centres in North America, and our Hospital’s survival rates match or exceed the best programs. With a staff that includes professionals from all disciplines of health care and research, the TRMC provides the best in complex and specialized care by creating scientific and clinical advancements, sharing knowledge and expertise, and advocating on behalf of children who need transplant care.
As innovators in transplantation, the TRMC improves the health of children by seamlessly integrating care, research, and teaching.
Everything we do is for kids.
At UCSF Benioff Children's Hospitals Pediatric Liver Center, we provide compassionate, comprehensive care to children of all ages – from newborns to teenagers. Our goal is to help every child with liver problems live as happy and healthy a life as possible. Our combined expertise and leadership in cutting-edge care and research allow us to offer the most advanced and effective treatments for all types of liver disease. We optimize outcomes for children needing liver transplant with strategies like living donor liver transplants and immunosuppression minimization. And as part of UCSF Health, we share the common mission of Caring, Healing, Teaching and Discovering.
Life Changing Medicine
As a nationally recognized center of excellence for pediatric transplantation, UPMC is a leader in pediatric liver transplant specializing in living donor transplant as well as transplants for those with metabolic diseases. Our pediatric hepatology and transplant services are always available for consultation. Pediatric transplant hepatology and transplant surgical fellowship training is offered by our teams. UPMC also directs a pediatric liver transplant network in collaboration with UVA Charlottesville, Advent Health Orlando and Atrium Health Charlotte, N.C.
Non-Profit
ALF’s mission is to promote education, advocacy, support services and research for the prevention, treatment and cure of liver disease.
Make-A-Wish® is a transformative charity serving communities across the globe. Together with supporters, we create life-changing wishes for children with critical illnesses, granting wishes that can positively impact their mental and physical state. Visit our booth or wish.org to find out how you can Share the Power of a Wish®.
Patient Advocacy
At ALGSA, we lead with purpose and heart—delivering vital support, trusted resources, and a strong sense of community to those facing this complex, rare genetic disorder. Our commitment is grounded in improving the lives of ALGS patients and their loved ones through collaboration, education, and empowerment. We are deeply engaged in science and research, working tirelessly to drive initiatives that uncover real answers, improve treatments, and ultimately lead to a cure. Through our research network and programs, we bring together all key stakeholders—physicians, scientists and researchers, biotech and pharmaceutical companies, patients and families, and other nonprofits facing similar medical challenges—to advance knowledge, fill critical gaps, and keep the patient voice front and center.
BARE was created to help solve some of the deficiencies and frustrations that currently exist in the Biliary Atresia community. We believe creating an organization dedicated solely to Biliary Atresia, will help push for progress in finding a cause, treatment, and one day, a cure.
PFIC Network is a 501c3 charitable patient advocacy organization founded in 2018 whose mission is to improve the lives of patients and families worldwide affected by progressive familial intrahepatic cholestasis (PFIC) and related diseases.